Jaipur: Two and a half yr previous Arjun Jangid, admitted in JK Lone Hospital in Jaipur, was given a brand new life by giving him an injection price Rs 8.5 crores! Arjun, who’s affected by Spinal Muscular Atrophy (SMP) Type-1, was recognized with this illness in December final yr. His father mentioned that it was not doable for our household to get such an costly remedy, however the docs of the hospital guided us for crowd funding, during which we acquired help from each sector, which made it doable in the present day.
Dr Priyanshu Mathur, a pediatrician and in-charge of the Rare Digit Centre who’s treating Arjun, mentioned that Arjun shouldn’t be capable of sit correctly because of this illness. Since this illness is uncommon, its remedy can be very costly. Dr Mathur mentioned that on this illness the half beneath the waist doesn’t work in any respect. Its remedy can be carried out solely until the age of 24 months.
Arjun affected by a uncommon illness now has a brand new life! | Jaipur News#FINVideo #RajasthanWithFirstIndia #Jaipur @RajGovOfficial pic.twitter.com/XdbZ5IsKlO
— First India News (@1stIndiaNews) September 14, 2024
Arjun is now 24 months previous and if extra time had handed, his remedy would have turn out to be tough. He advised that in this remedy, workforce members Dr. Gayatri Dangar, Dr. Lokesh Agarwal and Dr. Manisha Goyal additionally supported him. Arjun’s mom Poonam Jangid works as a lab assistant within the schooling division. In such a scenario, the minister of the division Madan Dilawar, IAS Krishna Kunal, Ashish Modi, together with all of the officers and workers of the division and their households helped by giving monetary help.
Arjun affected by a uncommon illness now has a brand new life!
-Gene remedy is being given to 2.25 yr previous Arjun in JK Lone Hospital
-Gene remedy is being given underneath the steering of Associate Professor of the hospital Dr. Priyanshu Mathur
– Apart from Dr. Priyanshu Mathur, Dr. Gayatri, Dr. Lokesh, Dr. Manisha additionally contributed to the workforce offering gene remedy
-First India had prominently highlighted the poignant struggling of the household of harmless Arjun
-After this, on the initiative of Education Minister Madan Dilawar and IAS Ashish Modi, the personnel of all the schooling division helped
– Actually, Jaipur resident Arjun has been recognized with Spinal Muscular Atrophy Disease
The solely remedy for this uncommon illness is gene remedy, for which crowd funding was carried out
-With the assistance of crowd funding, 17 crores price of ZOLGENSMA drugs may very well be organized
-ZOLGENSMA drugs is offered to the household at 50% low cost
-According to docs, Europe-made ZOLGENSMA is imported solely on the affected person stage
-At current, this drugs is imported for the affected person solely on the approval of CDSCO
